Baby born with 'permanent smile' due to rare condition

Baby born with 'permanent smile' due to rare condition

"With this came more difficulties as the hospital had little knowledge or support for such a rare condition," the new mom said.

An Australian baby born with a rare 'permanent smile' condition is melting hearts online. She has become a viral sensation after her parents used social media to raise awareness about her condition.

Ayla Summer Mucha was born in December 2021 with bilateral macrostomia, an ultra-rare condition where the corners of the mouth do not fuse together properly while the baby is in the womb.

Aylas' parents, Cristina Vercher, 21, and Blaize Mucha, 20, from South Australia, were shocked when they were told that her mouth was not "normal".

"Blaize and I were not aware of this condition nor had I ever met someone born with a macrostomia," Vercher, who lives in South Australia, told Jam Press. "So it came as a huge shock."

When Vercher saw her daughter for the first time, the condition was "obvious" since Ayla "was so tiny."

"We were instantly worried," she said.

Doctors at the Flinder’s Medical Centre in Adelaide, South Australia, were initially baffled as they had not seen a case before and it had been missed in scans ahead of the birth. They took several hours to inform the new parents about the condition.

"With this came more difficulties as the hospital had little knowledge or support for such a rare condition," the new mom said.

She added, "All I could think about as a mother was where I went wrong, especially when I had been so pedantic throughout my entire pregnancy. Yet, her father and I had been reassured by multiple doctors after days of genetic testing and scans that this condition was entirely out of our control and was of no fault of our own."

A comparative study published in Cleft Palate-Craniofacial Journal in 2007 noted just 14 cases.

Aylas' parents are talking to doctors over surgery to fix her wide smile. Macrostomia is more than just a cosmetic abnormality as Ayla may not be able to latch or suckle.

"We are yet to receive the exact specifications of the surgery, yet we know this involves a skin closure that results in minimal scarring," the mom said.

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A few months later after Ayla's birth, her parents decided to start the TikTok account @cristinakylievercher to raise awareness about the condition, in the hopes they might find more answers.

Ayla has been showered with love on social media.

"She’s so adorable!! these baby videos are so cute."

"Asking respectfully as a mom. Would you make more content to educate us on her condition I would love to learn more she’s beautiful."

"I just read on doctor Google that there are only 14 documented cases. She is so darn special. Be proud mama."

While there are some hurtful comments, the family has received an outpouring of love that outweighs the negativity.

"We will not stop sharing our experiences and favourite memories as we are so proud," Vercher said.

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